10/28/24

October 28, 2026

I've spent a good deal of today trying to articulate the difference between how I felt 2 and half months ago and the 5 months prior to that and how I feel today.   The pain I am left with is muscular, arthritic and nerve pain.  A couple of weeks before I went into the hospital I told Kevin that I thought I might be dying but I had no real reason to believe that was true.  The fact is, it was, but no one knew that my kidneys were failing and that my body  chemistry was so far off.  The pain, the feelings that created in my body are not definable. I knew something was really wrong.  I could not hold my torso up for very long and there was a shooting pain straight down my right leg from my hip.  That has been gone since the surgery.  My right kidney is atrophied.  Whatever that pain was, it is no longer. However, all of the arthritis is still there. Today I worked hard in the pool stretching my spine and my legs.  I let them hang and I worked them.  By 2 today I had hit a wall, I needed to stop and close my eyes, but it was not at all like the old feelings.  It is difficult to sit up and I have been aware of my leg all day long.  I am unclear what the next move will be medically, but even as I feel more myself, I feel more pain.  

I'm also going to call my Representative about the issues I'm having getting EJ's pay for the work he did as my PCA.